First publication in the works

U-IMD reached the critical milestone of enrolling more than 1000 patients

The U-IMD protocol was successfully amended for a longer runtime. The official end of the EU funded phase of the project is now 31.07.2021

Poster Presentation of U-IMD at the SSIEM 2019.

First meeting of the U-IMD Evaluation Group at the EMG meeting in May 2019 in Lyon.

Official launch of the U-IMD registry in May 2019.

First meeting of the U-IMD Members Board at the MetabERN Meeting 2019.

Data gathering for the first natural history studies using U-IMD data has started

2018 MetabERN Board Meeting

Rare Diseases Registries Projects' Kick-off Meeting